Preserving the independence of people living with multiple sclerosis towards the end of life.

BACKGROUND:

Multiple sclerosis (MS) is the most common neurological disease affecting the central nervous system. It has several subtypes. The condition’s pathophysiology can involve many body systems, but there are common symptoms. Treatment is both conventional and unconventional, including the controversial use of medicinal cannabis to control pain. Diagnosis can be difficult, as a case study illustrates. Support services are available to patients and carers in the form of MS support groups. People with MS contribute towards their own sense of wellbeing in a number of ways, and a key feature of survivorship with MS is the development of a positive attitude and a sense of hope. Palliative care involves facilitating a good quality of life as the condition progresses into the advanced stages. Invariably, people with MS wish to spend their last days at home among their loved ones. Numerous issues arise around end-of-life care and the role of the nurse in providing palliative care, which includes support needed by lay caregivers, who are often family members.